Wednesday, February 8, 2012

Toys for Children with Cerebral Palsy

Parents of children with cerebral palsy need to be encouraged to play with their children.  In fact, children who  do not have access to the play experience can be negatively impacted in their development, overall health and both their physical and mental well-being.  The same is true for children with spina bifida and muscular dystrophy  and those who experience a whole host of muscular and skeletal challenges. 

The good news is that there are current toys out there that can fit the bill or that might just need a little modification to make them appropriate.  Finding these play products gives parents the ability to delight and inspire a child with cerebral palsy and encourage a connection to play.   

So what should parents, family or caregivers look for when they are shopping for the kid in their life with some special needs?  Ellen Metrick, Chief Toy Evaluator of AblePlay, a website devoted to connecting children with cerebral palsy and other disabilities to appropriate toys, offers some advice.  “There are really two perspectives parents can take when shopping for the child in their life with special needs. First, they can look for toys that are geared to the abilities he or she currently has, or secondly, they can look for toys that will move the child towards the abilities she or he is working towards.  Both are valid ways to begin the search for play products.”    

What might be some elements within those categories that a parent might also want to look for?
Toys that provide stability for the child.  Children with cerebral palsy might have limited mobility and body control and need toys that are solid and stable.  Fortunately, there are swings and ride-ons in the marketplace that can provide core support to a child.  These products let kids enjoy the incredible freedom of both swinging through the air and riding into the wind (either self-propelled  or pushed).   Metrick encourages these play products by reminding parents, “Sometimes it is the best therapy to get a kid outside and doing an activity other kids enjoy.  Swings and bikes are among my absolute favorites for just that reason. “ 

Outside play sets are another great option. Parents should make sure they purchase one that is built well and provides stability for the child.  If the child is in a wheelchair, make sure the play set openings are wide enough to accommodate a child, has activities that can be reached, and includes any support they may need. 

Toys that are stable themselves.  Look for toys that can fit securely on a wheelchair top or that have suction cups, rubber or Velcro on them to increase stability.  Metrick also advises, “Adding non-skid adhesive strips to the bottom of a toy is a quick, easy way to make it stable and allow a child to easily manipulate it.”  Toys that are inflatable and can have some air taken out can increase a child’s ability to grasp it.  Drawing materials and crayons now come in ball and triangle shapes that make it easier for a child to use and enjoy.  Metrick advises parents to take the time to search a little, since there are lots of great options out there for kids of all abilities. 

For ideas on specific toys, and plays products categorized by disabilities go to www.ableplay.org.   AblePlay is a website that researches, rates and reviews current toys for children with special needs.  AblePlay is part of the nonprofit National Lekotek Center, the leading authority on play for children with disabilities www.lekotek.org

this in that

SWFL Ladies - it is time to make your reservations.
My next fundraiser will be for Freedom Waters Foundation.  
Please see the flier HERE.

President Obama Appoints New Members to Committee for People With Intellectual Disabilities - CEC Policy Insider  Last week, the Obama Administration announced several key new appointments, including the appointment of Peter Bell and Jack Brandt as members of the President’s Committee for People with Intellectual Disabilities. The committee is made up of 21 citizen members and 13 federal employees who are tasked...

Please vote again today for me... The Ugliest Blog Contest.
I am currently behind 57 to 62.
The Librum of Time is working pretty hard for this one.
Help me make her work a little harder.


Meet Wichita of Wildlife Waystation...  Thank goodness for the Waystation that misplaced animals may still have a home and thrive while educating us all.

Tuesday, February 7, 2012

Please cast your vote - blog style

Hey everybody...
Riley's Smile is falling into second place in The Ugliest Blog Contest.  

 Please wander by tonight, tomorrow and Friday to cast your vote
at Lady Jane Designs.


Thank you so very much for your support.
respect Smileys

Lady Jane Designs

Parenting Special Needs: Tips for Your Future Caregiver

http://myemail.constantcontact.com/Tips-for-Your-Future-Caregiver.html?soid=1108825804726&aid=BgDYk-O3MCA

Hanging with Riley

The Ugliest Blog Giveaway Voting continues through the week.  Please visit Lady Jane Designs and cast your vote to help brighten up Riley's Smile.  Thank you!

Riley loves food.  Dinner is his favorite and feeding him can be quite challenging while he laughs and writhes.  He rides his wheelchair much like a first timer aboard the mechanical bull at the local country bar.  By the time I got out the video he was much calmer but you get the idea.  Much of the meal lands on the kitchen wall and rains down on both of us.


Over the weekend Dad and Riley had lots of one on one time while little brother was on an overnight playdate.


Yesterday morning Riley woke vomiting and soon started with an unusual seizure.  For once I had the wherewithal to video.


Our lanai is bursting with blooms and strangely they fill me with melancholy.  The white butterfly orchid was delivered to my the morning of Riley's birth by the kindness of a distant friend.  Each time the buds return I remember the anguish John and I were suffering when they first arrived.


The red Cymbidium rarely shows shares its blooms with us.  Florida is certainly not the proper home for this beauty.  It is one of the few Cymbidiums we held on to after our move from Southern California.  It reminds me of the time in our marriage when we were full of hope and great plans.  I remember long lazy loving days in Santa Barbara when we had the time and energy to enjoy each other.


Yes, we are making progress in regaining some of that hope and joy in life.  It is a process and a difficult journey.  For now, I must turn my attention to Riley.  Thankfully, he seems to finally be keeping down a meal.

We are all special... Stacie Wiesenbaugh

Monday, February 6, 2012

Falling Off a High-Heeled Life: Make YOUR vote count!! I need YOUR HELP

Falling Off a High-Heeled Life: Make YOUR vote count!! I need YOUR HELP: In BlogLand we come across many wonderful and inspiring blogs one of those blogs for me is Riley's Smile. I have been following Stacie and ...

Falling Off A High-Heeled Life has been amazingly supportive to my blogging efforts and my personal stories. Please return the kindness and visit this beautiful blog. Stacie

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Sunday, February 5, 2012

Flight Platform Living: Making Plans to Leave!

Flight Platform Living: Making Plans to Leave!: I followed links, I searched the Internet and finally I found it...that remote institution...Bobby's 'home'! I read that 10% of t...