Sunday, January 1, 2012

The Disabled (ALL) Creed

Yeah, the Ghost Writer again (aka, husband/father/john).  This post is from "an inspired non-believer."  What I am inspired by/what I believe in (that is for me).  What you take away from these writings, if anything, is for you.

The background of this post: For Catholics and Non-Catholics, I am Catholic and look to God (the Church at times, but mainly to God).  This is my version of the Nicene Creed (Google it):


The Disabled (ALL) Creed

I believe in the potential of a disabled person, a maker of tears of joy/sorrow, and Creator of that which I have become and am willing to defend.

I believe in my Son, Riley, begotten by God's Will and at times a stranger to the world we (the functioning) take for granted.  Hit by seizures, forces unknown, nights without peace, rises again and teaches me to appreciate every small thing in life (a laugh, a sound, a smell, a step).  Night after night, day after day, in accordance with God's Will he is my son and his story I will share with you (as he shares it with me).

His Story, for those readers and for our understanding, was given to me by Heaven and incarnate by the Will of God and cast upon to tell this (his/our) story so that we may appreciate life, love, suffering and healing.

I acknowledge the limitations that they (the disabled have); and I look to help them overcome their limitations and fight for their cause, in this world, until they find peace in The Next. 

I believe in the Helping Guides-- the parents, the relatives, the friends, the supporters and the caregivers; who come to us to overcome limitations of the disabled.

I believe that this is one messed (*edited) up world.  I believe that life is not always fair.  I acknowledge the limitations of humanity/the disabled and the way the world is; and I look to make it a better place for the disabled (all) and those who care for them; pray for them or are willing to understand their world (and if I am Blessed enough, share mine).

This is my Story. 

Linking up:
Things I Can't Say



Stumbo Family Story

9 comments:

High Heeled Life said...

Riley is a wonderful blessing not only to his family .. but us readers too! For through his journey and telling of his story... we are all inspired to look at life and be thankful for each and every moment, even if the the journey we find ourselves on , is not the one WE had planned, but instead the one God's plan is paving for us.

May 2012 be filled with an abundance of blessings and many wonderful adventures. Thank you for sharing your wonderful words. xo HHL

pglm said...

John.....wow...this is powerful...so powerfully written--filled with love, hope, questions and a deep seated value for life as you know it.....
it touched me deeply and even though I've never met you and Stacy...it is amazing how much reading your blog connects me to your life....I utter prayers for goodness into the Universe hoping they will settle around you all just when you need them most. While I know you do not write this blog to inspire.....both of you have opened my eyes to the world of 24 hour disability handling---the sacrifices and the small gifts----your family fills me with admiration, respect and hope for a world full of love. Blessings to all of you this New Year....hug your lady and your boys...life as you know it....it is precious.

Ellen Stumbo said...

Thanks for sharing! It is true, we have become different people because of their limitations, which in turn have shown us ours.

Anonymous said...

pglm....your sentiment is everything I would love to say to Stacie and John...Thank you for sharing such eloquence!!!

CinfulCinnamon said...

Another great post by John. Thank you. I think Stacie will understand what I mean when I say, I come to this blog to keep myself humble. In much the same way that I will go to the animal shelter. When I feel like my much too "normal" world is upside down, or when I get just a little too full of myself I "remember" that there are those that struggle everyday just to live, and just to get their net breath. I know (I think) that I would never have the tremendous courage that you and Stacie show the world on a daily basis. And that is why I come, and I "peek" into the world of yours, so that I can stay grounded and aware.

Cheers for the new year. May 2012 bring you good things.

Shell said...

Oh, this is beautiful.

Kristen said...

What an amazing post. I love it. As a mother of my own child... I believe your creed - is an amazing one. Once, when we were in the ER - I looked at Alexander's tiny hands and feet. In each of them was a hole. Because that is where they tried to get an iv in each time. It was an unbelievable experience to see your baby with these ... pricks. I took a picture of them. To remind me of Alexander's suffering. And the awe that I felt that time. I've never written a post about it - because I'm not trying to claim Alexander is the second coming of the Messiah - but - this post is better with the same intent. Love it.

Hutch said...

Stopping by from PYHO and this just blows me away. Amazing post.

jesterqueen.com said...

I'm not Christian, but I recognize the beauty of faith in this testament. You should print it up and frame it, because it carries the strength of love.