I have been counting Clonic Seizures. There are so very many I missed but this is my attempt to keep track. Tonic Posturing Seizures are completely beyond counting and we just help him through as quickly as possible and move on with our day. Anyway, Riley had had some spasms in the night and was willing to sleep while I got some breakfast; while I was out of the room he went into a pretty big seizure. After receiving the Diastat rescue medication he still went on for 15 minutes. Holding him on my lap, I could feel the convulsions throughout his little body and see the discomfort across his brow as his eyes and lips fluttered and twitched.
It's hard to be thankful and appreciate life when our little one must live this life. I comforted him quietly hoping to allow Ronan to enjoy his pirate ship building and for John to proceed with his diving plan. But, John discovered us soon enough and wanted to cancel his day. Please go. We both need a little normalcy somehow. I insisted he go on his way but I know he will fret about Riley all the day long.
This is no life. No one deserves this. Not Riley. Not his family. And the lectures to appreciate my life, family and blessings from the oh, so many individuals who have no idea what it means to live this life are not only unwelcome but resented. Hey, heck of on invitation to participate here isn't it.. oh, well. That's how I feel.
Fortunately for Ronan, my mom was willing to drop Ronan for his planned playdate. He cannot spend his life cooped up as if he were special needs as well.
SeizureTracker.com: "November is National Epilepsy Awareness Month and the Epilepsy Foundation is asking everyone to Get Seizure Smart.
By taking and distributing the Get Seizure Smart quiz, you are helping
us reach our goal of getting 5 million Americans seizure smart in 2011. "
Not very thankful... Stacie