Monday, October 10, 2011

Got Respite... Go Fly A Kite

We are so blessed to have respite now.. through the Partners In Care program we are able to request about 150 hours a year.  I had lined it up awhile back hoping John and I could dive together this past Saturday.  Diving, however, is out for John at the moment due to his ear infection.  So, Riley happily settled with Nurse Debbie, John, Ronan and I headed to a secluded beach off Lover's Key with our kite.

It never escapes us that we can never take family outings as other families do.  Riley is always left behind or the outings must revolve around Riley's needs.  But, we have a son who needs these adventures and off we went.  Discovering he was required to wade through a lagoon to arrive on the beach upset Ronan at first, but by the end of the day he was the first one charging in ignoring all the crabs and jumping fish.

We are all special... by Stacie Wiesenbaugh

1 comment:

Anonymous said...

Sounds like a great day for your family. And I love that you have the Partners in Care to help out so that you don't have to worry about Riley while you take some much needed time. Love the pictures. Thanks for sharing.