Monday, July 25, 2011
Seahorse to Seizure
Little Miss L. shared joined us for an evening and brought along her latest camp project from the Bonita Art League. Note, Ronan has discovered camouflage tie dye.... no stopping him now.
Saturday morning, having arranged for Ronan to spend the day with ReRe and Riley with a respite nurse from PIC, John and I were able to have a day together. We drove northward to fossil dive off Venice Beach. The primary goal was simply to have some fun together. Fun has been sacrificed in our lives with the intensity of caring for Riley. Sometimes we wonder if we even remember how to have fun. The opportunity for respite is very new and rare in our lives that time together for just the two of us is nearly impossible. We had some great fossil finds... those will show up later on The Shark Tooth Guy.
My happiest moment was stumbling over a Seahorse (no we don't currently carry an underwater camera so I found a link). Over the past 17 years of diving I have seen many incredible creatures, however seahorses have eluded my all but once before. This time I made the discovery myself. She allowed my to reach out gently and she moved onto my hand and then to John before we had to move on. Those encounters together are magical.
We were home by late afternoon and reality quickly reasserted itself. Do John and I really have the right to freedom at all? Riley was suffering for a day without us. He refused to eat dinner and vomited up his medicines. Perhaps positioning and activity for Riley throughout the day has become intuitive to us but it seems that even R.N.'s dedicated to special needs children cannot work with him properly and we pay for that time away. Of course he lost all his medication. Riley took Zofran for the first time and to our great relief the vomiting stopped. However, by morning Riley suffered Seizure #82, needing Diastat to end the event, and was mostly unresponsive throughout the day.
We are all special... by Stacie Wiesenbaugh